• I think so, yes. :) I'm thinking it explains why building up my strength has always been so hard, and the past year has been very tough health-wise. It all makes sense now.

  • More babble always welcome! :) And thank you!

  • That sounds good! :) If it is good care, it's worth a bit of extra travel.

  • Oof! Mine was 2.5 hours away, I was very bed for a while after!

  • Yeah, I gave my doc a huge and detailed list of symptoms and he ignored the skin bits of the list because it didn't match his template of familiarity, I guess! That's okay, if I see another rheumatologist I'll ask for a second opinion - the hypermobility is the most annoying treatment-requiring aspect for sure, and a diagnosis of EDS will mean that other docs will be more accommodating if I say "but actually I think it's classical rather than pure hypermobility." Hopefully. :D

  • Well, my rheumatologist said benign hypermobility, but I have stretchy skin and cigarette paper scars so I'm fairly sure it's classical. I think the doctor didn't know how to recognise cigarette paper scars that aren't on knees, because I have no big knee scars!

  • Augh, that sucks.

    I struggle a lot with cold and wet weather too. It was really helpful for me to realise that my flare-ups might actually change with the weather and it's not just all in my head or something I've done wrong - but yeah, it also means accepting that I can't do anything to prevent it, which sucks in its own way.

    I hope the weather improves and/or you feel better very soon!

  • Gosh, sore! But I got an EDS diagnosis recently, which is going to be a very useful piece of paper indeed. It makes a big difference, knowing for sure and having the validation of a medical professional.