Personal blog. Autism, EDS/HMS, non-monogamy, gender stuff, knitting, zines. Pronouns: they/them/their/theirs/themself
August Convention Season and Ehlers-Danlos

I always knew going to BiCon and then Autscape in one month was going to be rough, but wow.
Those five green days in a row were Autscape, 16th-19th August, average 8,000 steps per day. The workshops and mealtimes and accommodation were all in different buildings quite far apart. And the week before the start of the chart was BiCon, which Fitbit tells me had an average of 8,500 steps per day.
For both, I was hurting and needing hours of rest in my room by the time I even got there. And I hadn't recovered fully from BiCon by the time Autscape started.
As you can see from the graph, for the past 9 days I've done under my goal of 3,000 steps per day. I've been very tired, taking naps, being in a lot of pain sometimes. I can't handle complicated food or drinks alone. If my support worker hasn't visited, I've not gotten dressed or showered. (Gross.) I've not gone further than my friend's house over the road, and that's only happened twice.
And it's paying off, because just this evening I woke up from a 2.5 hour nap and my calves don't hurt any more. My knees, wrists, elbows, hips, lower back, thighs and glutes still hurt, but wow that "why do my calves feel weird, what is that?" feeling is good. That feeling, my friends, is the absence of a pain that has lasted for at least a month.



