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spoonies

spoonies

For stories, articles, questions about chronic illness such as Lyme Disease, multiple sclerosis, SLE, fibro and more.

525 members
Posted bypillbobagginsin/spoonies-Sep 29, 2016 at 7:47 AM

26 Times Tumblr Got Real About Chronic Pain

  • Chronic Illness

26 Times Tumblr Got Real About Chronic Pain

"If we don't say it hurts, it hurts. If we say it hurts, it really fucking hurts."

buzzfeed.com

a little humour for anyone who needs it

Comments8
  • fluffywhitethingSep 29, 2016 at 7:53 AM

    Me: “I have a debilitating chronic illness that causes persistent fatigue and pain. It often prevents me from engaging in everyday activities such as leaving the house, meeting with friends or even standing for short periods of time.”

    Someone: “Have you tried exercising?”

    AAGGGHHHH!

    • pillbobagginsSep 29, 2016 at 7:54 AM

      trying to get it through their thick skulls that YOU DO EXERCISE BUT IT FREAKING HURTS... you'd have more luck explaining it to an infant.

      • fluffywhitethingSep 29, 2016 at 7:55 AM

        I went grocery shopping. That was fucking exercise. Shut. Up.

      • pillbobagginsSep 29, 2016 at 7:59 AM

        i make myself walk up to 10km because i'm always in a hurry to hatch pokemon eggs, if that isn't exercise i don't know what is!

      • fluffywhitethingSep 29, 2016 at 8:01 AM

        Last time I went to the regular doctor (after I lost 70 lbs).

        Him: You're doing great on the weight loss! How's the exercise going.
        Me: Same as it was. I don't. Still in too much pain.
        Him: Yeah, joint pain gets worse when you lose weight.
        Me: You said it was worse because I was too fat.
        Him: Well, any changes will cause joints to hurt.
        Me: Or it could be the EDS.
        Him: Yeah. That causes chronic pain. You could take ibuprofen.
        Me: Except I'm allergic to it.
        Him: looks at chart Except you're allergic to it.
        examines my knee which is obviously swollen even through my pants
        Him: Yeah, have you seen someone for this.
        Me: Yes. Many times.
        Him: I could give you a narcotic prescription so you could exercise more comfortably.
        Me: Or I could continue with the diet to lose weight and walk whenever I'm comfortable enough to do so as I have been.
        Him: Well, if that works for you.

      • pillbobagginsSep 29, 2016 at 8:44 AM

        god so many doctors are thick as shit!

    • MerahSep 29, 2016 at 7:54 AM

      I just snorted my tea.

  • Keelan_AceSep 29, 2016 at 9:18 AM

    It's frustrating when I get excited and share how I was able to go on a longer walk without too much pain and they go "maybe you just need to exercise more if walks are so hard". Basically any time when people talk about you getting more exercise or any of lifestyle change in response to saying something about chronic pain you experience.

spoonies

spoonies

For stories, articles, questions about chronic illness such as Lyme Disease, multiple sclerosis, SLE, fibro and more.

525 members
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