For stories, articles, questions about chronic illness such as Lyme Disease, multiple sclerosis, SLE, fibro and more.
CADASIL
Hey! I've got a tentative diagnosis of CADASIL (pending genetics confirmation, which will take 2 years, but the neurologist I'm seeing is fairly confident I've got it) and was wondering if anyone here has it?




I've never heard of it but I did a quick google for context. I'm so glad you have a supportive neurologist. Even if no one here has the diagnosis right now please feel free to post about your experiences and frustrations. I'll make a CADSIL tag if ya like? Just let me know.
Thank you, that would be lovely. At least then if someone else has it maybe they won't feel so alone.
Will do!
Done! I added it to this post for ya. <3
Thank you!
I'd never actually heard of this until 3 minutes ago and can't be any help with that, but congrats on finding a hopeful diagnosis! It sucks that you have it, of course, but at least getting a diagnosis allows you to start making sense of things and start figuring out how to manage it better, which sometimes can make a huge difference! Sometimes not being able to understand what's happening to you and why can be just as hard as the illness itself.
Thank you! It's nice to know I'm not going to die tomorrow or anything. I was rather worried it was something where I'd have only a few months left to live.